Family Caregiver Investigation

My next writing project is a series of ten mixed media blog posts about caregiving.  Specifically, my work is focused on how we make the work of caregiving visible and sustainable. I am interested in how we make caregiving count, how we account for it.  Right now, there are millions of caring people who work uncounted hours helping a family member or friend who cannot fend for themselves. They give up a bed in their home, to operate a caregiving bed. For some people, this work is draining their resources, depleting their quality of life, and seriously impacting their mental, emotional and physical health. Their socio-economic vulnerabilities increase with each passing day, week, month and year.  A friend of mine has watched her sixties disappear as she cared for a partner who suffered traumatic brain injury from a stroke. It doesn’t have to be this way. I am here to help change the circumstances of caregiving, especially for family caregivers, for the better. - Jenny...

Boyd, K., Winslow, V., Borson, S., Lindau, S. T., & Makelarski, J. A. (2022). Caregiving in a Pandemic: Health-Related Socioeconomic Vulnerabilities Among Women Caregivers Early in the COVID-19 Pandemic. The Annals of Family Medicine , 2845. https://doi.org/10.1370/afm.2845 Eales, J., Fast, J. E., Duncan, K., & Keating, N. C. (2022, February 20).  Family Caregiving Worth 97 billion.pdf . University of Alberta, Department of Human Ecology. I have this question about the quality of life and the quality of care and who benefits from the work being performed by family caregivers.  In a family caregiving setting, the Primary Caregiver serves multiple roles, vertical and horizontal, within the caregiving organizational structure. This means there is an unprecedented integration of intelligence about the work and managing the operation of a home-based caregiving bed. This is an extraordinary level of responsibility and authority assumed by the Primary Caregiver, it is e...